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Digital health real-world data is information about health and behavior collected outside the clinic by consumer and medical devices, such as…
A biobank specimen request workflow is the defined sequence a researcher follows to obtain samples or linked data from a biobank: application…
Biobank chain of custody is the unbroken, time-stamped record of who held a specimen, where it was, what condition it was in and what was done to it…
Biobank consent management is the set of records, rules and systems that link each participant's consent to every sample and dataset derived from…
Biobank data integrity means every sample record, consent status, derived dataset and analysis result stays complete, accurate, consistent and…
The S-index is a proposed metric — the subject of a $1 million NIH prize competition — that would credit researchers for high-quality, reusable data…
The European Union (EU) Artificial Intelligence Act (Regulation (EU) 2024/1689) regulates AI by risk tier, and healthcare research organizations sit…
Article 89 of the General Data Protection Regulation (GDPR) is the provision that makes scientific research workable under European data protection…
The Gabriella Miller Kids First Data Resource Center (DRC) is a National Institutes of Health (NIH) Common Fund program that makes harmonized genomic…
A Sovereign AI deployment checklist gives procurement teams a structured way to verify that an AI platform for sensitive health data keeps that data…
Secondary use of health data means using health information for a purpose other than the one for which it was originally collected. Data recorded to…
Genomic data governance is the system of policies, roles, technical controls, and accountability mechanisms that determines how genomic data is…
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